2.1 Database (OPEN)

The next meeting of the task force will be in Koper, Slovenia, 3-4 March, 2020: https://renalmri.org/action/27

In this Task Force, we will implement a database to contain an anonymised patient registry with critical phenotyping data, histopathology reports, proteomics, and imaging; and an image bank for benchmarking and quality control with phantom-, volunteer- and patient data. The idea is to establish a platform to support developments in renal image biomarker development by providing reference datasets that can be used for benchmarking and testing for instance own developed imaging techniques or image analysis algorithms.  

What kind of data can I submit ?

The platform should host study data spanning all recent imaging modalities in renal MRI, like but not limited to perfusion imaging (ASL, DCE-MRI), diffusion imaging, BOLD or relaxation measurements. Ideally this data is accompanied by (gold standard) reference measurements to allow using this data to benchmark renal MR imaging techniques and also to test and evaluate image analysis approaches towards standardized quantification of renal biomarkers.

How to access the platform ?

Access to the platform : https://parenchima-cost.quibim.com/login/#/ (for accessing the platform please contact the working group leads).

A tutorial (web meeting) on using the platform can be found here.

Were will my data be stored ?

So far, the working group agreed on using the Quibim Precision® imaging biomarker platform. Beside the data hosting this platform also allows integrated data analysis which makes it highly interesting for integrating algorithms developed within the working group for a standardized analysis of renal data.

What about IP and data sharing policies ?

IP and data sharing policies are important. Therefore, we have developed a template agreement to solve IP issues and data sharing policies between the participating site and Quibim. It can be can be found here.

Furthermore, each data sharing entity can individually grant access to their data within the platform. 

How can I access data stored in the database for my own studies?

First you need a password to access the database. Please contact the working group leads to forward your request.

What kind of data is already available ? 

We are currently started populating the database.
A list of available data sets will be updated soon.

If you have data to share please contact the work group leads.